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eRAM

encyclopedia of Rare Disease Annotation for Precision Medicine




Disease infantile neuroaxonal dystrophy
Comorbidity C0014544|epilepsy
Sentences 5
PubMedID- 24403284 Objective: the edu-com study is a randomised, pragmatic trial investigating the effect of a patient-tailored educational plan in patients with epilepsy with comorbidity.
PubMedID- 20181255 [17] showed that a simple if-then plan in epilepsy patients resulted in intervention participants showing improved adherence relative to controls on all three outcomes: doses taken in total (93.4% vs. 79.1%), days that correct dose was taken (88.7% vs. 65.3%), and doses taken on schedule (78.8% vs. 55.3%), all p < .01.
PubMedID- 23995695 Understanding patients' perspectives can be essential to developing a comprehensive and holistic care plan for patients with epilepsy and addressing their multidimensional needs.
PubMedID- 25206017 There is a need to develop a national program on epilepsy as a part of national health plan, besides suggesting the funding agencies to establish a more ambitious funding program into the causes, prevention, cure and care of epilepsy.
PubMedID- 23650471 There is a body of evidence suggesting that metabolism-based therapy can be considered earlier in the treatment plan for patients with specific epilepsy syndromes.

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